The second meeting of the Orange County Stroke Support Groups took place on Thursday, March 18, 2010 at 7:30 pm at the American Heart Association offices at 4600 Campus Drive, Irvine, CA 92617. Below are the meeting minutes. For future meeting information, please contact us.

 

Meeting minutes:

• May 8 Picnic Planning Meeting: 
  • When/Where: May 8 (Sat, 10-2), Aldrich Park, UCI; parking/facilities provided courtesy of Cramer Lab. Guesstimate N= 100 people; plan for 150
  • Main repository for info/communication: stroke@uci.edu (We will update website calendar/events)
  • Theme:  “Living Well After Stroke”
  • Food and Drink:
  • Subway sandwiches and water - (Cramer Lab to fund);
  • Action Plan (AP): Jill and Sandhya to coordinate with assistance from Dennis
  • Appetizers and dessert: potluck-attendees to provide
    AP: SC include request in email announcements
  • Plates, cups, napkins, utensils, etc-
    AP: Alison to provide/coordinate
  • Sponsors? Probably not first time out

• Program Format:
• Designated time (10:00a.m-2:00p.m) for:
  • SC to welcome participants, give brief talk on stroke prevention
  • A few pre-selected individuals will present their success stories in 2 min/100 words or less
    AP: SC to solicit stories in email announcement/flyer; OCSRN leadership to select and contact those chosen
  • Reps (or committee volunteer) from agencies/facilities/resource groups will give brief summary of services/info available-disseminate brochures, etc. (parade around so stroke survivors don’t have to)
    AP: Need point person-AM will solicit; Volunteer Committee will contact reps or present info if no reps available;
• Tables with resource information displayed; will pass out list of resources/table location in parking lot as participants arrive
  AP: Point Person above to oversee Volunteer Committee for organizing & coordinating, making map/list of tables
• Need extra tables for eating food-especially for survivors-Dennis
• Resources/Information to Display/Present
• Non-profit services
  • Adaptive fitness and recreational activities: 
    AP: AM has list of several-will coordinate contacting those sites with Point Person from ‘E’ above
  • Others to include:
    • Area of Aging/Disability-Tricia Brown to coordinate
    • Communication Assistive Technology (ATEC: Assistive Technology Exchange Center), Braille Institutes, CA Telephone Access Program-Candace Vickers to coordinate
    • Nifty After Fifty Gym-woman Karen Carlson to email info
    • CA Dept of Rehab Services: AM to contact
    • AHA-stroke prevention brochures Adam Sanchez to coordinate
    • Research Studies: Cramer Lab/Lucy, Stephanie Kaplan from Casa Colina
    • OCTA rep for Access Program: AM to coordinate
    • Falls Risk Reduction- Rebecca York?
    • Centers for Students with Disabilities-need volunteer
    • Accessibility in Public Parks: LD to coordinate
    • Vision Rehabilitation Clinics: AM will check with Dr. Eric Ikeda (Casa Colina) and Dr. Christine Hoang (So Cal College of Optometry)
    • Driving Rehabilitation:  St. Jude’s?-need volunteer to coordinate
    • Rehab Centers, other commercial entities-OK to include info about their programs so long as not too aggressive in their marketing tactics (Saddleback Adapted PE
      AP: Info to be sent to stroke@uci.edu; Dennis to check and forward to SC, LD, AM.  Do we need to send out a mass email with our list and ask people for other additions?
• Equipment/Furniture Needed:
  • Tables, chairs, canopies (?)
  • PA system (microphone and speakers, power source?)
  • Balloons to guide to site of picnic
    AP: Dennis to coordinate (Candace Vickers has friend with party rentals)
• Advertising
  • Flyers (with directions/map on back, schedule of events) via OCSRN email and mailing list (Cramer Lab), word of mouth
  • PSA-radio stations; Candace to explore
  • AHA network-volunteer who coordinates Star Training Program
  • Local Newspapers? AP: Need volunteer to do this-Lucy has list of some local papers/contact info from Robot Recruitment database; CPTA PR staff may assist as per Stephanie Kaplan
  • Local professional magazines/newsletters (OT, PT, ST, RN, etc.)
• Photos: Ask people to bring cameras (SC via email, flyers), Candace V’s husband
• Other volunteer duties will need: Students to get balloons, make signs, escort/direct participants
  AP:  Lucy to coordinate UCI students, AM to coordinate Chapman student
  

 

• OCRN Main Meeting
  • Website
• to add to main page list of providers: neuropsychologists, social workers, case managers, discharge planners, pharmacists, optometrists, vocational rehab, rehabilitation counselors
• Move register to top: “Become a Member”
• Fix full screen requirement
• Members to enter facility info, include links
• For now, most info available only to members
• SC/OCSRN leadership to review info to be posted
• Add calendar of events (educational offerings?)

AP: SC to coordinate with Vu

• Education/Speakers: November Meeting
• SC and other stroke researchers; possibly invite Dave R, Carolee W or Cathy S (Steve Wolf, Pam Duncan?)
• 3-4 hours, Sat, probably at UCI
• CEUs, CMEs: Lucy to work with Dana for MD, OT, RN; AM to pursue Chapman getting Approved Agency status, else individuals can get partial credit on own through PT Board; Candace Vickers to look into ST (ASHA need to submit application)