Orange County Stroke Rehab Network Quarterly Meeting Minutes June 29, 2010
The third meeting of the Orange County Stroke Support Groups took place on Thursday, June 29, 2010 at 7:00 pm at the American Heart Association offices at 4600 Campus Drive, Irvine, CA 92617. Below are the meeting minutes. For future meeting information, please contact us.
May 8 Picnic Review discussed by participants at meeting:
Took place on May 8 (Sat, 10-2), Aldrich Park, UCI; parking/facilities provided courtesy of Cramer Lab. We had about 200 attendees including stroke survivors, their families, vendors from various facilities across Orange County, UC Irvine and Chapman students/staff. Theme was: “Living Well After Stroke”
Food and Drink: were plenty for all attendee
Facilities: Attendees expressed that it was a beautiful setting but had limited accessibility
bathrooms needed to be closer
parking was too far although it was great to have students with wheelchairs to assist
vendor booths area was on uneven terrain, thus difficult to manage with assistive devices
A few pre-selected individuals presented their success stories:
Attendees highly valued having speakers share their stories and having an opportunity to socialize with others in similar circumstances;
Speakers should be given more guidance about what the length and topics of their talks;
Caregivers should also be given a chance to speak.
Resources/Information to Display/Present:
Attendees expressed that there was not enough information available to those who could not get to the booths; not all exhibitors were at their booths
Some suggestions were to have a vendors who would repair wheelchairs for free in exchange for marketing their products and have vendors donate door prizes.
For future picnic, use other parks: in Brea, Fullerton, Placentia, or the public park near UCI that is level and easy access to parking and bathrooms.
Try to get support from service clubs such as Rotary Club and women’s clubs.
Try to get paying sponsors/vendors to defray costs; charge vendors a nominal fee to have a booth
Have a link where stroke patients can write comments on ideas that have helped in their recovery.
Attendees mentioned some other resources: St. Judes and St. Joseph’s have patient gyms, Fullerton meridian health club has a warm pool, ADI (American Dog Institute), using links from ADRC (Aging and Disability Resource Center) and adding other rehab links.
Add stroke support groups locations
Also, to add links from vendors who can pay to be on website.
Lecture on November 6, 2010
Ideas for topics
Stroke recurrence prevention
Stem cell research
Gaming in stroke rehabilitation
Have two separate tracks of lectures: one geared toward health professionals and the other for stroke patients/caregivers.