The meeting of the Orange County Stroke Support Groups took place on Saturday, November 17, 2012 at 12:30 pm in the Chapman DPT Program Conference Room at Chapman University. Below are the meeting minutes. For future meeting information, please contact us.

 

Thanks to Chapman University DPT Program for donating the use of their conference meeting room!

Meeting minutes:

1. Introductions: Attendees included community health care professionals from St. Joseph’s, St Jude, Long Beach Memorial, Kaiser, Registry, Long Beach VA, Goodwill Gym, Orange Coast College, UC Irvine, Chapman University, Foothill Presbyterian, Rehab Institute of Southern California, Cedar Sinai and the Magic Group.


2. We reviewed our third annual symposium, “The OCSRN Stroke Rehabilitation Continuing Education Workshop,” which took place the same day, Saturday, November 17, 2012, from 9 a.m. –12 noon at Chapman University.  Speakers included: An Do, M.D. of University of California, Irvine’s Department of Neurology, who gave a talk entitled “Brain Computer Interface for Neuro-Rehabilitation”,  Steve Small, M.D., Ph.D. of University of California, Irvine’s Department of Neurology, who gave a talk entitled  “Brain Repair after Stroke: Shooting for a Cure” and Carolee Winstein, Ph.D., PT of University of Southern California’s Department of Biokinesiology and Physical Therapy, who gave a talk entitled “Challenges to Translating Neurorehabilitation Research into Practice: A Perspective from One Clinical Scientist.”Continuing Education units were provided for nursing, OT, PT, and SLP. Attendees gave good feedback regarding the workshop. Some comments included: the conference was very well organized and had good helpers, have a whole day workshop, three 1 hr speakers works well for attention, breaking up into smaller groups and that the room was two cold. Ideas for future speakers included: having a stroke survivor case study, panel discussion with physician/patient/therapist, acute phase treatment/evidence, cardiopulmonary issues in stroke, medical aspects and complications of stroke, new interventions in stroke, concrete treatment options and depression screens/psychological issues in stroke.


3. The group discussed the OCSRN website, and how it can better serve our needs.  Some suggestions included: adding links to research studies that are free and participants were encouraged to email us links.


4. The group discussed our latest Stroke Awareness Picnic which took place on May 5, 2012.
   We shared photos from the picnic. Some suggestions were to invite stroke clubs in OC, provide copy of flyer to all case managers in OC, have magnets that say “Every May Stroke Picnic” and “ocsrn.com”, advertise in senior center magazines, have big posters of the flyer/send them to facilities, have a celebrity speaker, have an article in OC Register as a personal interest story, have a Facebook page, use linked in, contact OTAC, APTA, ASHA, AANN (American Society of Neuroscience Nurses) Regional directors to put in their magazines, advertise on libarary community boards, work with google to make OCSRN pop up when do search, invite local TV stations and have contest/prize for best Stroke Awareness video.


5. Other Topics:
   Dr. Cramer discussed plans for UCI’s efforts in starting a Brain Repair Center and our current UCI study on telerehabilitation. Dr. Cramer also discussed the potential of having a community wide research project to gather information from therapists, using surveys on what treatment works best and primes the sensory system best (i.e. Bobath, Neuroifrah), creating a standard questionnaire used by all hospitals at discharge and having a pathway for stroke rehabilitation treatement.